The creation of a registry is the step prior to other claims, such as the economic
The Basque Government has submitted to the central Administration of the clinical analysis and diagnostics corresponding to the 28 people that they suspect is suffering from birth defects because of thalidomide, with a view to the creation of a state registry of people affected by this ancient drug.
In a note, the department, basque Health and Osakidetza report that they have completed pre-clinical work and diagnostic evaluation required for the creation of the state register of people affected by thalidomide.
The tests have been coordinated from the Genetics Service of the Hospital Universitario Cruces, where he has established the Drive diagnostic for the whole of the Basque country.
you Have requested your medical evaluation a total of 28 people who suspect that the congenital anomaly that suffer from could be related to the consumption by their mothers of thalidomide, a drug, already retired, he was marketed to calm the nausea in the pregnancy.
All of the clinical documentation, the results of the complementary studies and the interim reports have been sent already to the Technical Unit of the Institute of Health Carlos III, attached to the ministries of Science and Health.
it Is to determine, on the basis of scientific criteria, the registration of persons who had suffered malformations during the gestation process consistent with those described for thalidomide, in the period 1950-1985, and whose origin cannot be explained by other embriopatías or chromosomal abnormalities.
The tests were carried out between the months of January and June past, and currently, people assessed are waiting for the Scientific-Technical Committee in charge of this issue is to contrast the clinical information of all cases assessed in Spain and to conclude the final diagnoses.
The objective of the said registration, as explained by the basque Government, is the recognition of the condition of the affected person, “as a previous step to resolve claims of another order, such as the economic”.
In the Basque country, professionals in the areas of Cardiology, Ophthalmology, Otolaryngology, and Radiology have collaborated with clinical geneticists and molecular in the execution of these tests to assess the above-mentioned 28 people.
For the uptake of these potential hit has been “fundamental”, according to the basque Government, the collaboration of the professionals of Primary Care and the coordination of the department of Health and Osakidetza with the Association of Victims of Thalidomide in Spain, Avoid.
This partnership, among other initiatives, have carried out a campaign of dissemination through the social networks to inform people with suspected to be affected by the thalidomide of his right to submit to an evaluation, consensus with all the AUTONOMOUS communities.
The Executive vasco has stressed that the direction of Avoid has thanked the “involvement, effectiveness, transparency, and collaboration” of the department of Health and Osakidetza, with the possible affected.
The department, basque Health, highlighted that, “it takes time to conveying his concern for the situation of these people, the Spanish Government, only one with powers in the resolution of the main demands of these people.”
The basque minister of Health, Jon Darpón, considers that the creation of the record concerned is “a major step towards the necessary recognition” of those affected, and has reiterated the will of cooperation of your department.
According to the criteria of
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