Sebastien Pelletier and Edith Lemay are a Canadian couple with four children. When her eldest daughter began to show unusual clumsiness of hers, she was tested to see if she had any vision problems.

The results determined that he suffered from retinitis pigmentosa, which results in retinal degeneration and gradual loss of vision. The speed at which this can occur varies drastically. Three of the four children have this rare genetically inherited condition.

For this reason, the whole family is traveling around the world, so that the children can see, taste and remember the wonders of the planet, before it is too late.

Mia, who is now 13 years old, was diagnosed with the genetic disorder when she was three years old. Diagnoses for Colin, seven, and Laurent, five, followed. Only nine-year-old Leo is not affected by retinitis.

One specialist suggested helping prepare children for this darker future by showing them photos of the richness of the world: its places, landscapes, animals… The idea was to build an archive of visual memories that they could use in later life. .

But the parents had a better idea: “I decided that I was not going to show them the elephant and the giraffe in the books, that it was much better to show them in real life, and we decided to go all out and show them how beautiful our world is and fill their memory with as many nice things as we can”, says Edith, the mother.

The family left almost a year ago and, so far, they have been to ten countries (Zambia, Tanzania, Mongolia, Thailand…), and Nepal will be next on the list. Along the way they have narrated their journey through social networks.

“We made a list of activities that they wanted to do on the trip, like horseback riding, learning to surf or sleeping on a train. Laurent, for example, wanted to drink juice on a camel for some strange reason. But we thought it could be a lot of fun. He was four years old at the time and stood his ground: “I want to drink juice on a camel,” recalls Edith Said and done.

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